I am writing this on 15th March, which has been designated as Long Covid Awareness Day. People have taken to social media to share their stories, wear pin badges, and raise awareness of this condition. It is sad that they feel they have to.
Here in the United Kingdom, the government has been reviewing what happened during the pandemic, yet very little attention has been given to Long Covid and how it affects millions of people. It has not been included in the list of ‘industrial injuries,’ meaning that frontline workers and those who contracted the disease through work cannot claim compensation. For myself, I feel cut off and disregarded by the very institution I once believed would care—the Church of England.
Some doctors and medical professionals understand, but many still refuse to acknowledge that Long Covid exists. I have been ridiculed and patronised by some along the way—experiences that have been devastating and set me back. Meanwhile, each subsequent government has threatened to slash the welfare bill, complaining about the dramatic rise in disability benefits since the pandemic. But rather than asking why so many people need support, they focus on cutting it, leaving thousands fearing for their future.
Yet despite all this, those of us with this condition have found each other. Through forums, podcasts, and social media, we have built a community. We have traded treatments, offered support, and stood alongside each other during difficult times.
When I started Life with Long Covid, my goal was simple: to reach out. I hoped that by being honest about my experience, others would know they were not alone. The response has amazed me. Every time I think I have recorded my last episode, I receive messages of support—people telling me they cried while listening, relieved to finally find someone who understands. The book has reached even further, and I continue to be humbled by the response.
I have benefited so much from this community, and I will continue to record and write until Long Covid sufferers get the recognition and support we deserve.
Sending hugs. Thank you for existing!
Thank you for your vulnerability.