Sounds about right. I stopped seeing the doctor about it years ago. I saw them so often after I became very severe that I think they're probably sick of me. And I've long since exhausted everything they have to offer, so I don't see the point in going back again. I think a study into what NHS GPs actually think about ME/LC would be interesting, if it's not been done already.
That would be interesting. Whenever I have a benefits review they basically ask if I have seen a doctor and mark it against me if not. The whole thing is a nightmare as you are correct, they can't offer anything much to help.
Yes, I get just the same, from GPs and also consultants when I have got that far. I feel completely let down by the medical system, which makes me very sad. The only progress I have made was through my own research, leading to a private prescription for LDN, which does seem to be helping me. The fact that GPs are unwilling or unable to offer any genuine help is a terrible indictment of their profession. As a result I have lost all trust in them.
My doctor is really supportive but there is nothing he can do and he openly admits it. However he encourages and supports me coming in with loads of research and ideas and if he can help with anything he does. I feel blessed.
Not sure if I have Long Covid, or side-effects of statins, or age-related decrepitude, but have almost everything described by sufferers of Long Covid. Unfortunately, no diagnostician anywhere knows what to do with such a range of idiomatic symptoms that are presented. I live in an EU country with an excellent healthcare system. As a scientist I am undertaking a voluntary protocol to isolate causes and effects, and my GP is cooperating. That’s probably the best we can do.
"I don’t blame the doctors, but the system here in the UK is broken"-
Same here in Germany. There were cracks here before in the system and now you have 1 Mio+ additional chronically ill people on top. In some cases doctors are indeed ignorant but in most cases simply overloaded.
In my case its bitter because some crashes could have been prevented I am pretty sure if the system only would have worked slightly less bad.
99% of what I know now about this condition, I did research on my own. I dont expect this system to come up with anything helpful in the near future if ever.
I’m on my fourth GP since being diagnosed with ME/CFS. My first doctor, the one who had me as a patient since I was 22, was great.
Now I’m lucky to get any attention for the debilitating fatigue and PEM.
I’m resigned to it but live in dread of worsening because any investigation will be limited.
I totally get that feeling Krista , thanks for reaching out.
Sounds about right. I stopped seeing the doctor about it years ago. I saw them so often after I became very severe that I think they're probably sick of me. And I've long since exhausted everything they have to offer, so I don't see the point in going back again. I think a study into what NHS GPs actually think about ME/LC would be interesting, if it's not been done already.
That would be interesting. Whenever I have a benefits review they basically ask if I have seen a doctor and mark it against me if not. The whole thing is a nightmare as you are correct, they can't offer anything much to help.
Yes, I get just the same, from GPs and also consultants when I have got that far. I feel completely let down by the medical system, which makes me very sad. The only progress I have made was through my own research, leading to a private prescription for LDN, which does seem to be helping me. The fact that GPs are unwilling or unable to offer any genuine help is a terrible indictment of their profession. As a result I have lost all trust in them.
I totally get that Alan, i was hoping things had got better hence my recent visit.. but clearly not !
My doctor is really supportive but there is nothing he can do and he openly admits it. However he encourages and supports me coming in with loads of research and ideas and if he can help with anything he does. I feel blessed.
I like that approach , it’s refreshingly honest!
Not sure if I have Long Covid, or side-effects of statins, or age-related decrepitude, but have almost everything described by sufferers of Long Covid. Unfortunately, no diagnostician anywhere knows what to do with such a range of idiomatic symptoms that are presented. I live in an EU country with an excellent healthcare system. As a scientist I am undertaking a voluntary protocol to isolate causes and effects, and my GP is cooperating. That’s probably the best we can do.
100% relatable.
"I don’t blame the doctors, but the system here in the UK is broken"-
Same here in Germany. There were cracks here before in the system and now you have 1 Mio+ additional chronically ill people on top. In some cases doctors are indeed ignorant but in most cases simply overloaded.
In my case its bitter because some crashes could have been prevented I am pretty sure if the system only would have worked slightly less bad.
99% of what I know now about this condition, I did research on my own. I dont expect this system to come up with anything helpful in the near future if ever.
Ahhh Pat, I am so sad that this is not just a uk thing. We have to be our own doctor these days and it’s hard! Thanks for commenting.